As our charity for the year, we like to get involved where we can with DEBRA and as they are holding a Big Breakfast event on 23rd May 2013 what better way to get involved. Help raise some money for a great organisation that supports individuals and families affected by Epidermolysis Bullosa (EB) and getting fed in the process...
So if you are local to Crowthorne on the 23rd May 2013 from 8 am till 11am then pop in and show your support at Unit 13, DEBRA House, Wellington Business Park, Crowthorne, Berkshire, RG45 6LS. Further information about the condition can be found by visiting the DEBRA website or details about how to organise your own big breakfast by downloading the information leaflet from the links below:
Look forward to seeing you there.
Magikos IT are proud to announce that we are now members of the Federation of Small Business (SMB). We have chosen to become members as we feel this partnership continues to show our dedication and participation to make Small and Medium size businesses the best they can be. With member benefits including legal, health and safety, business advice and guidance, TAX protection, legal documentation, networking events and further discounts on products and services the member fees are easily justified. The describe themselves as "The Federation of Small Businesses is the UK's largest campaigning pressure group promoting and protecting the interests of the self-employed and owners of small firms. Formed in 1974, it now has 200,000 members across 33 regions and 194 branches." To find out more about the FSB you can visit their website by clicking here.
For further details of the products we offer please get in touch with Magikos IT - details of how to get in touch can be found on our 'Contact Us' pages or alternatively if you would like further information regarding the Magikos IT Partnership Programmes please take a look at the information and links on our 'Magikos Business Partners' page.
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Come and visit our stand at this years BMG Event; The Future of Berkshire Business
"The Future of Berkshire Business" is the third major event brought to you by BMG Events.
Following on from the success of "Collaborating for Growth" and more recently "Business Success in Berkshire" which saw over 600 delegates in attendance, we are looking forward to hosting "The Future of Berkshire Business" at the Royal Berkshire Conference Centre, Madejski Stadium in Reading, Berkshire.
Tuesday 16th April 2013 from 8am-4:30pm
There will be a mixture of small business owners, entrepreneurs, decision makers and business managers attending, all keen to make new contacts and meet new customers and suppliers to help grow their businesses. As with our previous shows, there will be a theme and this time it will be all about the "future" including technology, energy, future proofing, risk assessment, planning and development and much more.
As well as more than 70 businesses exhibiting their products and services, there was a fantastic full-day event programme with inspirational and educational speakers, hands-on workshops, networking sessions, stadium tours and more.
Magikos IT is pleased to announce that DEBRA has been chosen as the Charity of the Year.
DEBRA is the national charity, which has its HQ in Crowthorne, that supports individuals and families affected by Epidermolysis Bullosa (EB) - a painful genetic condition which causes the skin to blister and shear at the slightest friction, or even spontaneously.
DEBRA focuses its work in three areas:
- DEBRA fund pioneering research to find effective treatments and, ultimately, a cure for EB.
- DEBRA provide an enhanced specialist EB Nursing Service, in partnership with the NHS, to deliver optimal healthcare to children and adults living with EB.
- DEBRA provide social care support to help people live with dignity. This is a service parents and people with EB can call on, to reach out for advice, advocacy in the face of red tape, and emergency grants. We provide access to specially adapted holiday homes and opportunities for social interaction.
DEBRA interconnect each of these areas to ensure a holistic approach to our care, from birth, for as long as it is needed.
What is EB?
Epidermolysis Bullosa (EB) is a very rare genetic condition in which the skin and internal body linings blister at the slightest knock or rub, causing painful, open wounds.
EB is likely to affect 1 in 17,000 live births and it is estimated that there are currently 5,000 people with the condition in the UK. Because EB is an inherited condition (it cannot be caught), which is passed on genetically from parents to children, first time parents often do not know that they are carriers and will have no prior warning that the child will be affected, until birth.
The condition has a number of distinct forms. In its least severe forms, the blistering is confined to the hands and feet making holding things and walking extremely painful. In more severe forms all the body is affected and the wounds heal very slowly, giving rise to scarring, physical deformity and significant disability
For many affected by the condition, the blistering is not limited to the skin but also affects the inner body linings such as the mouth and oesophagus. The eating of solids is, in these cases, almost impossible, and the disposal of the body waste incredibly painful. When this condition applies, malnutrition is often a consequence, further reducing the body's resistance to infection.
People with the more severe types of EB also have an exceptionally high risk of developing skin cancers, shortening their lives by approximately 30-40 years. In its most severe form, the condition is fatal in infancy.
Whilst considerable progress has been made in recent years in understanding EB and identifying the genes that cause the condition, there is as yet no effective treatment or a cure.
More information will be posted to the website in coming months detailing how people can get involved and if you wish to find out more information or check out what activities are planned in your local area take a look at the DEBRA website (https://www.debra.org.uk) for details.